And so it is October

Time for me to ask you to donate money. (My story and other information can be found here)

Neuromyelitis optica (NMO or Devic’s Disease) is an uncommon disease syndrome of the central nervous system (CNS) that affects the optic nerves and spinal cord. Individuals with NMO develop optic neuritis, which causes pain in the eye and vision loss, and transverse myelitis, which causes weakness, numbness, and sometimes paralysis of the arms and legs, along with sensory disturbances and loss of bladder and bowel control. ~From The National Institute of Neurological Disorders

It was a rough year with Texas being out of work for 6 months, and I’m trying to get some type of prize together. (if you want to donate towards the prize, let me know!) There will be only one prize this year.

The rules:

  • Donations can be made through October 31, 20112 October 26, 2012 at the Guthy Jackson website.
  • Every $10 donated gets you one entry in the drawing.
  • One share of this on your blog or Facebook gets you one entry (let me know you did).
  • You must put Stacey Pope in the purpose section or email me a copy of your donation receipt.
  • Drawing will be done on November 1, 2012

There are two funds to donate to this year. One is the traditional Research Fund and the other is the Friends of Patient Day. (they’re both on the donation page).

Research Fund: 100% of your donation goes directly to scientific and clinical research. The Guthy-Jackson Charitable Foundation does not allocate any donated monies to administrative support of the Foundation.

Friends of Patient Day: You help make the impossible become possible by financially supporting a patient’s attendance. NMO Patient Day offers patients a rare chance to connect with leading NMO clinicians, scientists, and other NMO patients – a first for many NMO patients given the rarity of this disease.

I can tell you that being able to connect in this way has made a world of difference for me and my treatment course.  I would not have been able to attend this year without their financial support. This disease can be expensive (even with insurance) and many cannot afford to go.

Thank you in advance for taking the time to read this and donate.

 

 

 

4 thoughts on “And so it is October

  1. If there is any way (in addition to donating) that I can help, please let me know. I could knit a shawl to add to the prize package, perhaps? Tiny knits? xoxoxoxo

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