Cold morning + electric blanket = happy girls
Both Maggie and I. My happiness resulted in a 3 hour morning nap.
Texas finally woke me up with the smell of homemade waffles and fresh brewed coffee. Sometimes I love that man to death.
∞ ∞ ∞
Today, after the storms came through, it feels like it’s 90F.
Ok, so maybe not that hawt, but I do have the windows open.
I’m still curled up on the couch. Knitting, catching up on shows, and fretting.
∞ ∞ ∞
Some people seem to do these things with such grace and quiet dignity. I’ve been trying that approach, but I am freaking out more and more as the infusion date approaches. Maybe it’s that we don’t talk about these things or maybe I just don’t have the grace and dignity that others do.
∞ ∞ ∞
Hello?!? You’re what? Destroying my B Cells? Aren’t they kind of important? So what if they’ve been misbehaving? Do they deserve the death penalty for that? Will it work or not? What if it doesn’t? I don’t like the next option. Has the drug I am now on permanently done damage, or will that “side effect” go away? Will I experience any of the side effects of the new drug? Will I have a reaction to the infusion? How will I feel after?
The best answers from my medical team is “everyone reacts differently”. On the NMO boards you have the range of “worst experience of my life” to “the worst part was being stuck in the chair all day”. (Of course, for me, the worst medical things I can imagine are a chest tube and having the Quinton catheter placed for plasmapheresis, so maybe this will be easy peasy.)
I know that it’s just the unknown and my thoughts are often my worst enemy in these situations. However, I feel like spazing out.
∞ ∞ ∞
Sooooooo… that’s where I’m at. Anyone want to take bets on if I spaz or not? How about if Texas annoys me to the point of stabby on Tuesday?
I’m off to get a bunch of meals ready so all Texas has to do is throw them in the oven. Otherwise, I’ll be eating pizza and waffles for the rest of the week. O.o
Happy Sunday y’all!