Snuggly wuggly, timey wimey
Feb 9th, 2013 by Stacey
Cold morning + electric blanket = happy girls
Both Maggie and I. My happiness resulted in a 3 hour morning nap.
Texas finally woke me up with the smell of homemade waffles and fresh brewed coffee. Sometimes I love that man to death.
∞ ∞ ∞
Today, after the storms came through, it feels like it’s 90F.
Ok, so maybe not that hawt, but I do have the windows open.
I’m still curled up on the couch. Knitting, catching up on shows, and fretting.
∞ ∞ ∞
Some people seem to do these things with such grace and quiet dignity. I’ve been trying that approach, but I am freaking out more and more as the infusion date approaches. Maybe it’s that we don’t talk about these things or maybe I just don’t have the grace and dignity that others do.
∞ ∞ ∞
Hello?!? You’re what? Destroying my B Cells? Aren’t they kind of important? So what if they’ve been misbehaving? Do they deserve the death penalty for that? Will it work or not? What if it doesn’t? I don’t like the next option. Has the drug I am now on permanently done damage, or will that “side effect” go away? Will I experience any of the side effects of the new drug? Will I have a reaction to the infusion? How will I feel after?
The best answers from my medical team is “everyone reacts differently”. On the NMO boards you have the range of “worst experience of my life” to “the worst part was being stuck in the chair all day”. (Of course, for me, the worst medical things I can imagine are a chest tube and having the Quinton catheter placed for plasmapheresis, so maybe this will be easy peasy.)
I know that it’s just the unknown and my thoughts are often my worst enemy in these situations. However, I feel like spazing out.
∞ ∞ ∞
Sooooooo… that’s where I’m at. Anyone want to take bets on if I spaz or not? How about if Texas annoys me to the point of stabby on Tuesday?
I’m off to get a bunch of meals ready so all Texas has to do is throw them in the oven. Otherwise, I’ll be eating pizza and waffles for the rest of the week. O.o
Happy Sunday y’all!
Pizza and waffles sound fine to me. Mebbe Texas will annoy you to the point of near-murder so you can lose your shit on him, and then burn off all that stress and crazy energy. I dunno what B cells are, but I think if they don’t do their jobs they just need to die. Of course, that’s my general thought about everything that doesn’t work or gets in my way or has a stupid, or whatever. (If people could read my mind lately they’d back away in fear after bringing me offerings of chocolate and booze.)
I definitely would be spazing out…wouldn’t blame you if you do…
Will be thinking good thoughts that all goes well and sending a prayer or two your way also.
xoxo
I’m betting on stabby rather than spazzy. I, however, would be totally spazzy.
I hope there are more snuggly naps and coffee and waffles for the calm and warmness, and good weather to get outside and ride the tractor or dig in the dirt when there is an excess of the energy/anxiety. Sometimes we need a good flip out or cry at times like this. It is always a challenge to balance trying to know more to be as prepared as possible and make the best decisions, and not getting lost in that quest to know what we will not know until after. I’m thinking all of the good things for you and yours. xoxox
You are stronger than you think. Look how far you have come in your life. Look at how much you have changed over the years, the choices you’ve made and how happy you are in your life. Grace is over rated. You are being honest and open and I truly admire that. You’ll be fine. You’ll have to hurt him but he can take it.
I wish I could be there for you/with you. Tell him to take good care of you or he’ll have to answer to me.
xoxox