Purling Dervish

I don't really know what's going on

Posts Tagged Love Thurs

Thursday Love!

Mar 11

Posted by Stacey in Uncategorized | 6 Comments

With lots of SQUISH!

ZOMG! Hescominghometodayafterfourweeksbeinggone!!!!!

::::::: bounce, bounce :::::::

SQUISH!!!!

♥  ♥  ♥

Can I just say that Skinny PC loves this fact so she can kick my arse on Facebook games?

Theivin’ neighbors.

O.o

♥  ♥  ♥

I found a great video on NMO.   While it’s not awesome that someone has been affected by it, it is great that there is stuff like this being done. (yeah,  can’t embed the video, but it’s totally worth going to see)

Reese Witherspoon on NMO

Oh, and while you’re there… if you watch the other video?  The one with Dustin Hoffman showing in the preview? My Dr. House is in it several times. He’s the 17th little person clip (not even half way through) Just after the pictures of the rivers and just before Reese Witherspoon talks.

♥  ♥  ♥

Catch y’all on the flipside!!!!!

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Love Thursday – Friendz Edition

Mar 4

Posted by Stacey in Uncategorized | 7 Comments

01.  I love that I have a friend who can rationalize bacon ranch pasta salad as an appropriate after workout meal.

02.  I love that I have a friend who is knowledgeable in stooopid mortgage stuff.

03.  I love that I have a friend who is a knitting monkey and sends me the best.links.ever.  (is this picture better?)

Romi shawl cookie 3

04.  I love that I have a friend who inspires and motivates me to be healthier.

05.  I love that I have a group of friends who are amazing, talented, funny, snarky, loving and crazy. (yeah, I copped out on this one, but I got tired of the linkity)

06. I love that I have a gym not even 5 miles from my house.  And maybe, just maybe I might actually do the walk/bike thing there.  Maybe.  When I can make it up the kill without wanting to DIE!

07.  In the meantime, I love that I get to drive his Mustang because not only is it loud and fun and fast, but I feel like one bad mofo when I drive it. (as opposed to feeling cute and sporty when I drive mine)

08.  I’ve been doing zumba classes and I love them.  No, really.  LOVE!  But I need to be aware of my limits as I triggered a little eyesight loss thingy. (don’t worry, it’s Utoff’s Phenomenon – it happens. It’s like bad electrical wiring getting over heated)  It might pay to have a session or two with a personal trainer or a physical therapist who can help me find a good, balanced routine that will help me get back into shape and feel healthier without pissing off the NMO or the arm.  (all the neuro said was “low weights, high reps”  Dooode, that sooo doesn’t help)

09.  Found on Facebook (despite your political views, this is funny so get the stick outta your… )

The IOC stunned the world this morning when they awarded U.S. President Barack Obama a gold medal for Men’s Skiing. Even though he’s never skied an IOC spokesman said “Barack Obama is going downhill faster than anyone this year.”

♥ ♥ ♥

Ok.  All outta love.

So you get some random crap too.  WOO!  Bonus!

01.  The train started moving again, so he’s back on the 3 gone/1 home schedule.  EXCEPT!  The Northeast had tons of stooopid weather and he’s not coming home this weekend, but next Thursday.  Yet another reason to hate snow.

02.  The doc tried me on Ambien again … this time, the new CR.  It still totally doesn’t work.   I was on a pill that worked except when it didn’t (hahahahahah ahem) Fine, some nights I just could not fall asleep.  The past two nights I’ve been taking an ambien and one of the other pill (instead of two of the other) and I have had the worst sleep I’ve had in a year.  The stuff must trigger nighttime ADD or something.

Swearz I sit up and scream “squirrel!”

O.o

03.  I have options today and I really don’t know what to do.

  • I can sit and knit and watch BBC shows
  • I can try a cardio kickboxing class (except for the whole eyesight loss thingy)
  • I can go workout on the machines and then do a PIYO class – they combine pilates and yoga
  • I can go to the aqua class, but I’d have to leave in about an hour a half hour and I don’t think I’ve had enough coffee
  • I can work on some yard stuff that HAS to be done and I know I shouldn’t do it,  but a.) I can’t find a yard guy that isn’t addicted to something and can show up and b.) Texas just doesn’t have the time when he’s home.  This stuff needs to be chopped before it turns green and starts growing again.

04.  While I shared some facebook love above, I’m about to share some hate too.  Can y’all stop with the stupid hoax postings?  I reported someone this week because they clicked on some link and I kept getting tagged in weird photos that aren’t even me.

Yes, I’m one of those people that play the stoopid games, but what I’m amending my wanton ways and trying to stop posting the game stuff by 7 so my friends don’t have to see all that crap.  I wish they would find an easy way that I could just post to the people who are just in my games list.

And people’s ignorance is all the more obvious over there.  I seriously have to bite my fingers some days to keep from calling them idiots and showing them where to find the facts from reliable sources. Or the “if you’re really my friend you’ll repost this”.  WTF is that?

♥ ♥ ♥

And now that I’ve crapped all over Love Thursday, I leave you with some love again.  Skinny Porkchop and her new baby Murdoc.  I’ll have to get better pics later.  This was his first day home.  He’s now 6 weeks old, they’re hand feeding him (the mother’s milk dried up  – she had 11 puppies – and the vet recommended sending the puppies to their homes so they could be fed properly).  He’s all head and legs and is a Great Dane.

new baby

Happy Thursday y’all!

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Love Thursday – show some

Feb 25

Posted by Stacey in Uncategorized | 5 Comments

You’ll notice the header change.  Rare disease day is Sunday.  I’m sure we all know someone with a rare disease.  Hell, if you’re here on this page then you do know someone.  Let me tell you why this day is so important.

Rare Disease Day is the perfect occasion to inform or remind people that rare diseases need to be paid special attention to, because:

Rare diseases are life-threatening or chronically debilitating diseases with a low prevalence and a high level of complexity. Patients with very rare diseases and their families are particularly isolated and vulnerable. The life expectancy of rare disease patients is significantly reduced and many have disabilities that become a source of discrimination and reduce or destroy educational, professional or social opportunities.

The rare disease patient is the orphan of health systems, often without diagnosis, without treatment, without research, therefore without reason to hope.

The lack of specific health policies and the scarcity of expertise translate into delayed appropriate diagnosis and difficulty of access to care. The national healthcare services for diagnosis, treatment and care of rare disease patients differ significantly in terms of their availability and quality. European citizens have unequal access to healthcare services and to orphan drugs.

Research on rare diseases is scarce
~ info “stolen” from here

So, while you’re contemplating all of that, why not consider donating to NORD, or one of the partners in your country.  Or to a research organization that is working on a rare disease that affects someone you know.  Maybe even … say a foundation that supports Devic’s Disease research (now, that’s just my personal favorite).

Happy Thursday y’all

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It must be Love Thursday

Dec 17

Posted by Stacey in Uncategorized | 9 Comments

Because I just took the trash out.  Yes.  At midnight.

sneak peek

That’s for Carrie.  Yeah.  It’s not much, but I’m not done yet, it’s dark … oh, and it’s midnight.

∞  ∞  ∞

My in-box is so wildly out of control that I don’t even know where to begin.  They’ve increased my medication again (hopefully only one more increase until I’m at the right level) and I’m just exhausted.  With a capital X.

O.o

Yes, an X.

What?

I keep trying to explain to people and I’m so tired I can’t even put a cohesive sentence together.  I also can ask you the same question about 5 times in 20 minutes and not remember what your answer was or that I even asked it and didn’t just think about asking it.  (that even annoys me)  I get lost in email and texts.

Before you even say “But Squish, why don’t you go to bed instead of being up at midnight?”  Because not only does the medication (and the plex and the fun thing I have) cause tiredness, it also causes trouble sleeping.

So, there  you go.  If I’m not emailing you back it’s not because I hate you  (well, I probably don’t hate you), but because I just   don’t have the get up and go-go.

∞  ∞  ∞

See, that right there is my Thursday Love post… or it’s the best one you’re getting out of me.

∞  ∞  ∞

Oh!  Wait!  Love!  Straight No Chaser has and album (cd, whatever… I’m old) and I now own it.  Sandy made me do it.  Yes, I have Christmas music love.

∞  ∞  ∞

And this… I’m thinking of buying one since I may have gotten a little more crazy about cleaning and sanitizing since they started killing off my immune system.

∞  ∞  ∞

Happy Thursday y’all

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Thankful Thursday

Nov 12

Posted by Stacey in Uncategorized | 7 Comments

I realized this morning that it was Thankful Thursday and my first thought was “Oh Crap! I haz cranky” .  And then Carrie texted me.

She said that I should tell you all that YOU should be  thankful you’re not around me so I don’t shoot you. O.o

1.  I am thankful for neighbors like this (and perhaps you should be thankful you don’t have them) Naked Rock Band (or perhaps it just looked that way).

Texas 017

2. The same neighbors that are watching the fur babies for me and made a totally fabulous dinner last night (including crab, steak and mushrooms) just in case I have to eat hospital food for a week.

3.  However, they are also the ones that have started putting up their Christmas lights… tell me, what do they look like to you?

Texas 016

3. The joy that is rewards points – which are giving me a free night in Dallas so I don’t have to get up and be out of the house by 4 a.m.

4. The love of a good and decent and kind man who sends me songs like this when he misses me*.

These Arms Of Mine – Otis Redding

5.  Awesome friends – who totally understand if I’m not quick on the draw with returning emails or getting presents out on time.

6.  Coffee

Happy Thursday y’all

* and my response today

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Love Thursday – Now Thankful for November

Nov 5

Posted by Stacey in Uncategorized | 12 Comments

Since I’m weepy roid girl today, I guess I can do a Love Thursday post and take Carole’s lead (and Margene’s and all the other wonderful women out there) and revamp it for the month.

And we’re off:

Today, I’m thankful for:

1. A wonderful friend who knit me this beauty that has become my shawl of comfort whenever I have to do anything icky.  Hospitals, doctors, taking people to the airport.  I love this shawl with all of my heart. (yeah, I totally need a better picture of it)  It went with me for the infusion this week.

swallowtail.jpg

2.  Friends, online and IRL who get the roid rage girl and let me vent and make me laugh at the insanity of it all.

3.  Thankful that the rain has stopped for a little while.  Seriously?  It pretty much rained non stop since the beginning of September.

4.  Thankful that my mother has limits and boundries and can totally be there when I need her, but not be overbearing- even if she does sneak off when she’s had too much of the roid girl.

5. Access to top of the line doctors.  One saved my arm in California and one may save a whole bunch more here in Texas.

6.  Following Margene’s lead… for all the complaining I do about what I pay for my health insurance, I have it.  And it is good.  And I couldn’t imagine trying to get my health in order and figured out without it.

7. Neighbors who do this for halloween:

random crap 027

Wait for the closeup of his pants:

random crap 028

I love my life today.

Happy Thursday Peeps!

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Angie Day 2

Sep 10

Posted by Stacey in Uncategorized | 10 Comments

Angie 098

Gallons Growlers of beer.

Homey sez “40’s are for wussies”.

Angie 042

Nora gets corrupted tomorrow.

Happy Thursday y’all!

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I’m already visualizing the duct tape over your mouth

Jul 23

Posted by Stacey in Uncategorized | 9 Comments

“If everybody minded their own business,” the Duchess said, in a hoarse growl, “the world would go around a great deal faster than it does.”

01.  It is Thursday right? Because I am ready for this week to be O.V.E.R.

02.  Anyone want to do my doctor appointment for me tomorrow?  Free week at the lake!

03.  Still debating if it’s better to have the initial appointments/tests  or get the results while he’s gone.

04.  Something weird happened with his schedule and he’s going to be home in 8 days! (well, actually 8 days, 9 hours, 36 mins and 17 seconds)

04a.  Not that I’m counting.

04b.  Somehow that one less week gone has made a HUGE difference in my attitude.

05.  Today, I feel like Alice in Wonderland.  Take one pill to make you sleepy, take one to wake you up.

06.  I think I’ve convinced Texas that spinning for two hours counts as cardio.

07.  I took 4 minutes off my swimming time.

08.  I took some “before” pictures the other day and I think I’m still a little nauseous.  No, I’m not sharing.

09.  My Universe message from the other day:

It’s quite a small thing, Solimar, to begin wondering which beliefs of yours are limiting, which thoughts shut out others, and which philosophies need updating, but OMG, it makes for the BIGGEST life changes!
“And the people of Flint began to gossip…” ~The Universe

10.  It is really (no, really) a good idea that I don’t have a conceal carry permit.

11.  That Jillian Michaels Fitness thing for the Wii … don’t do it.  Great in theory and if you skip some of the exercises, it actually works. I still haven’t figured out how to jump logs.

11a.  I should have read the reviews instead of being “well, it’s Jillian, it has to be good”

12.  I want this yoga thing for my ds.  It has great reviews.

13.  OMG!  Is this going to become a fitness blog?

14.  I totally need to go buy a couple of bottles of wine and down them tonight.  Just to set your minds at ease.  I’m doing it for y’all.

14a.  Swears.

Happy Thursday y’all!

*eta: I’m still trying to figure out how google says I just posted yesterday’s post half an hour ago.

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