Tag Archives: NMO

I’m out of here.

I’m getting ready to leave for patient day. I have mixed feelings this year as so many have passed away since the last one. It’s hard to see how many people are missing from our little band of misfits and yet it is good to see others dealing with NMO.

Texas is holding down what is left of the farm. Which is still makes me sad. We found out Moo and 3 of his girls went to a really nice family. Abby wasn’t sold yet, and she was the sweetest of the goats. The lady we sold everyone to is keeping the geese for breeding stock. So, with ours, she now has over 80 geese. O.o Her neighbors are going to HATE her! I do miss all of the sounds in the morning. And I’m going to miss what would have been our first round of baby goats.

Don’t forget that there is still time to donate to The Guthy Jackson Charitable Foundation and win some yarn. The details are in posts below this one.

Happy Tuesday y’all!

Where did that pile of cow pookie come from?

Hi! Life! It decided to throw an unexpected curveball. I can’t talk specifics, but all good thoughts/ intentions/ prayers/ lighting of candles/ dancing naked under the full moon (whatever it is you do) and such would be greatly appreciated.

You, however, get a bonus out of all of this messy stuff going on over here. An extra week to spread the word and donate!

Some of you know that the Guthy Jackson Charitable Foundation has a patient day for us every year. Starting the weekend before, they have all of the doctors and scientists and great minds from all over the world get together and share their knowledge with each other. That’s one of the premises of receiving money from the Foundation is that they HAVE to share with each other what they’ve learned. Kind of an awesome research model. I wonder what would happen if more research was done this way.

Anyway, the docs and scientists are doing that this weekend and patient day is next week, so…. I won’t be able to get information out of anyone until that’s all said and done. Unless I possibly badger and abuse the awesome staff while I’m at patient day. I actually don’t know if I have it in me to do that.

Prizes are in a post somewhere down below and you now have until November 8th to donate.

 How do you get a chance to win?

Click here to go to the Guthy Jackson donation page, choose “Memorial Donation” and put Stacey Pope in the “purpose” section.  For every $10 you donate, you’ll get one entry. If you share this contest on Facebook, Twitter or wherever (and let me know), you’ll get another entry.

Deadline to enter is November 1, 2013 November 8 (12 noon Texas time) and I’ll be announcing the winners on November 2, 2013. November 9th

Spread the word! Donate what you can. Win some awesome yarn.

I still can’t pronounce it right

I just returned from 3 days in Dallas, (that felt more like a week) after attending the Rare Neuro-Immunologic Disorders Symposium.  It centered on repair and recovery and most of all, hope.  At the end of this post, you can find the information on how to donate to people with one of these disorders and get a chance to win some prizes.

Friday night, Texas and I had a lovely dinner and spent some time shopping in the big city. Saturday, we ended up attending The Halloween Block Party in Dallas. It was either that or get a contact high from our neighbors at the hotel. Anywho, despite the rain, it was so much fun. I can’t decide which pictures to post.

I’m only about 9 days out from attending patient day in Los Angeles and I might have to spend that time recovering from all the things.  Well, and finishing a couple of knitting projects.

IMAG0244Moses sez “hey y’all!”

How was your weekend?

How do you get a chance to win?

Click here to go to the Guthy Jackson donation page, choose “Memorial Donation” and put Stacey Pope in the “purpose” section.  For every $10 you donate, you’ll get one entry. If you share this contest on Facebook, Twitter or wherever (and let me know), you’ll get another entry.

Deadline to enter is November 1, 2013 November 8th (12 noon Texas time) and I’ll be announcing the winners on November 2, 2013. November 9

Another prize added!

If you haven’t been here before, this is why I started fundraising every year. Collin was a wonderful little boy who passed away a little over a year ago from NMO.

How do you get a chance to win?

Click here to go to the Guthy Jackson donation page, choose “Memorial Donation” and put Stacey Pope in the “purpose” section.  For every $10 you donate, you’ll get one entry. If you share this contest on Facebook, Twitter or wherever (and let me know), you’ll get another entry.

Deadline to enter is November 1, 2013 (12 noon Texas time) and I’ll be announcing the winners on November 2, 2013.

What can you win this year?

yarn2

  • Madelinetosh Tosh Sock in Green w/Envy and any one of Maureen Foulds patterns (left)
  • Approximately 2310 yards of Cash DK (merino/cashmere/nylon) in the Superhero Collin color way. (center)
  • Beaverslide Dry Goods 2 ply sport/sock yarn in Hidden Lake and any one of Maureen Foulds patterns (right)
  • A pair of hand knit socks from Maureen! Even better, they will be the prototype for her next design! (measurements will be needed by 11/8 and socks will be sent in late January/ early February)

Spread the word! Donate what you can. Win some awesome yarn.

Donate and win!

As many of you know, raising money to find a cure for Neuromyelitis optica is near and dear to my heart because I suffer from NMO. (I might even be in that video up there)

What is it, you ask?

NMO stands for neuromyelitis optica, originally known as Devic’s Disease. NMO is an incurable autoimmune disorder. The body’s immune system attacks its own healthy cells, most commonly in the optic nerves and spinal cord. It can cause temporary or permanent blindness and/or paralysis, and may have periods of remission and relapse.

What can you win this year?
  • Madelinetosh Tosh Sock in Green w/Envy and any one of Maureen Foulds patterns
  • Beaverslide Dry Goods 2 ply sport/sock yarn in Hidden Lake and any one of Maureen Foulds patterns
  • A pair of hand knit socks from Maureen! Even better, they will be the prototype for her next design! (measurements will be needed by 11/8 and socks will be sent in late January/ early February)
How do you get a chance to win?

Click here to go to the Guthy Jackson donation page, choose “Memorial Donation” and put Stacey Pope in the “purpose” section.  For every $10 you donate, you’ll get one entry. If you share this contest on Facebook, Twitter or wherever (and let me know), you’ll get another entry.

Deadline to enter is November 1, 2013 . November 8 (12 noon Texas time) and I’ll be announcing the winners on November 2, 2013.. November 9

Happy Sunday y’all!

p.s. There is a rumor that I may be getting the dye pot out and adding some Merino/Cashmere yarn to the prizes in the coming week.

Who put this blog in the middle of my day?

No, seriously. What is this thing?

Apparently, people also comment and those things go to my e-mail. Who knew?

I have been able to wear hand knits! My favorite sock head (not knit by me) and my favorite scarf has gotten quite a bit of use with the cold front (a real one) that just moved in. Part of me is ready to pull the a/c units and enjoy it. However, this is Texas. I’m assuming we’ll get a couple of hot days in the coming weeks.

Get ready for the whole NMO fundraising thing. I was trying to get it going by this past Monday, but it turns out I have things in my head. Kind of ironic that NMO acting up is holding back a fundraiser for NMO.

I will tell you that Maureen has agreed to donate a couple of patterns and a pair of handknit socks.  The prototype for a new pattern even.

In the meantime, why not go check out all of the wonderful patterns and buy one or two.

Happy whatever day it is y’all!

Happy Jug Day!

Obviously, I should not be knitting in the car. I messed up the cast on/first few rows for this 4 times. 4 times! I was inspired by Sarah’s giant gnome and thought it would be quick and easy to knit and that I could make some decent progress while traveling. HA!

made me

Because of the busy week I had, I made absolutely no progress on the stitching stuff for this month’s CMMDI. Meh. It’s not like it hasn’t been sitting around for years already.

Next up on the weird travel schedule is the 2013 Rare Neuro-immunoligic Disorders Symposium. Luckily, it is in Dallas and I have Priority Club points to spend.  I will probably not be attending patient day in L.A. this year, (unless a magical pigeon drops a plane ticket in my lap) so at least I”ll get to see Sex Kitten and gain some knowledge.

Besides, I wanted to lose another 30 pounds before I saw those people again. Or something like that. That’s my story and I’m sticking to it.

Happy Jug Day y’all! Stay hydrated!

I think there is a conspiracy afoot*

I need to learn crochet enough to make one of these. I like the stained glass version too.  I think I’m going to end up at the lake for a few hours (or days) picking brains.

I’m running away to Dallas twice this week. Once to be a research subject and once for a luncheon with local NMO peeps and The Wizard. I’m still debating the luncheon. Something about denial and/or just wanting to rest.

Maybe I’ll pretend I’m going and have a day for me away from the farm. Maybe I’ll just meet my husband for lunch in town.

I didn’t get as far as I wanted in the past week, but I started one of these before I met Texas. I guess it’s a win?  I have a goal for next week, so bring on the bad daytime television!

Happy Monday y’all!

*to keep me busy and tired I mean, I started this post at 10 a.m.